Monday, October 1, 2012
Sunday, July 22, 2012
After the storms pass..............the sun WILL shine!
She is clothed with strength and dignity, and she laughs without fear of the future. -Proverbs 31:25 |
It has rained in Mississippi for the past two weeks and my
body has been crippled by it. My RA has been so very
active that I have landed in the hospital twice unable to
stand on my own two feet, grasp toilet paper with either
hand, or simply open my mouth due to my jaws being
locked. The pain has been so overwhelming that I am
now on a new journey to the Mayo Clinic in Rodchester, MN
to enter a three week Pain Management Program. I've
had RA for over 21 years and it has gotten progressively
worse. For so long I thought that I was one tough cookie!
I could press through the pain and grin as if nothing was
wrong. But the past two years it became harder to mask
and harder to deal with. I do NOT want to have to
use medicine that zonks me out or changes my
EVER-SO-UNFORGETTABLE personality!
So...we are choosing this new path. I ask for prayers
as I begin this journey. My rheumy has referred me
and now it is the insurance approval wait. OH THE JOYS!
Friday, July 6, 2012
They won't always be babies!
It is strange how I viewed my kids as they were little
tikes.... I soaked up each moment so that I never
fully grasp the idea that they would indeed grow "UP".
As middle school and high school hit, I was still
viewing my kids as my babies... they still needed
me and were always coming to me with questions.
As my son's senior year approached it began to hit
home that my "babies" were growing "UP" and
soon they would be growing "OUT". I always
knew in my heart they were a gift from God to
guide, guard and protect until the day I was
to help them fly own their own. YES, it hit
hard and I cried tears of joys and tears of
"where did all the years go" when my son left
for college. BUT oh how this year has marked
the beginning of a "TRUE EMPTY NEST".
I watched my baby girl leave for Indiana
for summer missions with a joy filled heart.
As the days passed, she began vocalizing
how much she missed home and then
came her "countdown to return". It made
me think..... upon her return, she will have
one year left at home before joining her
brother at MSU.... where did all the time
go? It is a blessing to know that my kids are
healthy, happy, intelligent, and moral young
adults that are able to fly own their own....
but OH how I will miss them. I will smile
and help fix up her dorm room at the junior
college a mile from our house this year...
but in my heart there WILL BE TEARS!
MY BABIES are growing "UP"!
Friday, June 22, 2012
Learning .....
I woke up Monday feeling better than I have in over 7 months! I took advantage of it and cleaned, washed clothes and put them away, made tshirt flowers, took my sweet puppy for a walk and cooked a meal for my husband. THEN... I woke up Tuesday STILL FEELING GOOD....ohhhhhh... what did I do...the same thing... took advantage of every moment and spent the day "crafting" with a friend, finished up all of the laundry, and cooked dinner for my hubby. Wednesday didn't follow along..... it was a day that RA reminded me that it has a mind of its own! Before having to retire in February of this year, I would have kept pushing and would have ended up feeling much worse!! SO .... I have learned a lot .... and I rested all Wednesday! I woke up today feeling better. Of course, I wasn't able to run a marathon...or even walk two miles! However.... I finished cleaning the house, did a little organizing in my craft room, cooked a yummy meal for my husband, and am wide awake thanks to a little puppy who had to go potty! I am grateful for weeks like this.... when I have more good days than bad! These are the weeks I try to focus on when it is the opposite. Now....back to bed??..... hopefully.
Sunday, June 10, 2012
Isn't it beautiful...............
Isn’t it
beautiful how God leads us to EXACTLY
what we need to feed our souls. I have been
unable to attend
my home church due to my
low white blood cell count and have been
watching
sermons on television with my
husband. Recently I started reading
several bible study blogs posted by women,
and have been so blessed by their
diligence,
desire to spread the love of God, and
their sweet, sweet spirits.
http://www.mydailywalkinhisgrace.blogspot.com/2012/06/what-do-you-do-about-that-thorn-in-your.html
http://www.mydailywalkinhisgrace.blogspot.com/2012/06/what-do-you-do-about-that-thorn-in-your.html
This is a wonderful message about learning
to lean on Christ THROUGH the difficulties
we face. Each of us has a "thorn in the flesh"
and how we choose to deal with it makes
all the difference in our lives and our
state of happiness. God desires for
each of us (the healthy or the sick) to
walk in His fullness. We must learn
first that HIS GRACE IS SUFFICIENT!
It is all about perspective....
HOW WE CHOOSE TO view things...
HOW WE CHOOSE TO handle them.
WITH GOD it is much easier...
He will supply the strength we need to
get through each day IF we realize
that indeed HIS GRACE IS SUFFICIENT.
Living with a chronic auto-immune disease.
I've learned that as long as I
stay focused on the TRUTH...
THAT my creator has a purpose for
everything under the sun (even my
illness....the thorn in my flesh) it
is easier for me to face each day.
Knowing that YES, indeed I have
limitations....but I HAVE A PURPOSE!!
and I know that if I choose His grace
and choose to rest in Him, that I will
be able to handle the pain, the
limitations, the fatigue, the treatments,
and learn to use this THORN IN MY FLESH
as a way to spread His love THROUGH it all.
My favorite quote :"We go through what
we go through to help others go through
what we went through." I can choose to
be bitter or better....I choose to be better
and empathize with others who are
traveling the same road as I with this
roller coaster of ride "thorn in my flesh"
called Rheumatoid Arthritis, Fibromyalgia,
TMJ, and Psjogrens Disease.
Thanks Tracy....for sharing your heart!
to lean on Christ THROUGH the difficulties
we face. Each of us has a "thorn in the flesh"
and how we choose to deal with it makes
all the difference in our lives and our
state of happiness. God desires for
each of us (the healthy or the sick) to
walk in His fullness. We must learn
first that HIS GRACE IS SUFFICIENT!
It is all about perspective....
HOW WE CHOOSE TO view things...
HOW WE CHOOSE TO handle them.
WITH GOD it is much easier...
He will supply the strength we need to
get through each day IF we realize
that indeed HIS GRACE IS SUFFICIENT.
Living with a chronic auto-immune disease.
I've learned that as long as I
stay focused on the TRUTH...
THAT my creator has a purpose for
everything under the sun (even my
illness....the thorn in my flesh) it
is easier for me to face each day.
Knowing that YES, indeed I have
limitations....but I HAVE A PURPOSE!!
and I know that if I choose His grace
and choose to rest in Him, that I will
be able to handle the pain, the
limitations, the fatigue, the treatments,
and learn to use this THORN IN MY FLESH
as a way to spread His love THROUGH it all.
My favorite quote :"We go through what
we go through to help others go through
what we went through." I can choose to
be bitter or better....I choose to be better
and empathize with others who are
traveling the same road as I with this
roller coaster of ride "thorn in my flesh"
called Rheumatoid Arthritis, Fibromyalgia,
TMJ, and Psjogrens Disease.
Thanks Tracy....for sharing your heart!
Wednesday, June 6, 2012
Don't put off your happy life......
Thanking God for this season
in my life!! Learning to enjoy
EVERY breath!!!
(note: Several pictures on this blog were taken by Tommy Young.
He lives in Summit, MS and is a wonderful photographer.
He can be found on Facebook.)
Our trip to New York....
My sis, me and my baby girl!
After our wonderful trip to New York, I
had to take about 4 days just to recoup.
What a wonderful trip and what priceless
memories!! Of course, I'd not want to live
there....way too fast paced for this southern
girl. Example: As we were walking the streets
of New York, a man dropped his umbrella on the
sidewalk. I said, "Sir, sir! You dropped this...sir!"
NO RESPONSE...he just kept walking at a VERY
fast trot. Another couple saw me TRYING to
catch the man and get his attention. They said,
"Mam, he has earplugs in, he can't hear you."
So the man took the umbrella from my sister,
because it was obvious my RA slow traveling
self was NOT going to catch up with the DUDE.
He proceeded to run and catch the guy. IN
MISSISSIPPI, you'd hear a "bless your heart,
thank you so much for picking it up for me."
BUT NOT IN NEW YORK....not a step was
missed ...it was like watching a hand off
in a track race.
I like my southern roots!! JUST FINE!!
BUT TRULY....we enjoyed every
moment. We took it slow...as my sweet
daughter seems to have switched roles with
her mama now.... I told her, "If ever I
questioned your love for me... I DO NOT
NOW!" She was so nurturing and so over-
protective, making sure I was not overdoing it
and causing more harm to my joints.
OH HOW I DO LOVE MY BABY GIRL!!
Our first day, after the plane ride and
getting our luggage and a ride to the Hyatt
..... totally POOPED!
cruisin around The Statue of Liberty :)
photo taken by Tommy Young of Summit, MS |
Cruising around the Statue of Liberty. Unforgettable.
Pershing Square right outside of our hotel.... on Park Ave.
My me, Tina Turner, and my sister-gift...ROLLIN ON THE RIVER!
Aunt Leigh and LeeAnna in the Statue Of Liberty (WAX MUSEUM)
Elton, Elton, Elton...... what more can I say.... gotta
shine like him.... plus.... why just stand there and
smile... LIVE IT UP WHILE YOU CAN!!!!!!
I think these photos say it all!! We had a
great time at the wax museum before
going to TIme Square, Hello Kitty and
The Empire State Building.... a little windy....huh Nanabug!
and got to see Wicked... it was wonderful!
I CRIED LIKE A BABY!~~~ sitting beside my baby!
We also went to ground zero, the memorial
church for 911,
Photo taken by Tommy Young of Summit, MS |
we took a virtual helicopter tour
of the city, ate some amazing sushi and Italian,
and I got to see my baby girl sing at Carnegie Hall
with 4 other members of the Southwest
Mississippi Community College Choir,
Photo taken by Tommy Young of Summit, MS |
Photo taken by Tommy Young of Summit, MS |
...a very good time was had by
all....but ALL were ready to return
to their little corner of the world...
MiSSiSSipPi!! Thank you Lord for
an amazing journey with two of
my favorite people! Can't wait to
start some scrapbooking!!
Tuesday, May 22, 2012
The Power of Paint art project.....
New York ....here we come.....
Monday, May 21, 2012
Today has been a rough one......
Sunday, May 20, 2012
The List......................
Each new day is bringing with it another reason to
enjoy this season in my life. My hubby and I
always make "the good/the bad" lists when facing
hard decisions or things in our lives that can't be
changed. He knows how very literal and visual I am...
and this is a way that I can see on black and white
the GOOD, the BAD, and the UGLY all at the
same time. Each time we go through trials or changes
or have to make a big life-changing decision, he
always says..."It's going to be alright baby! God's
got this too....He has NEVER let us down." I have
such a strong faith, yet I am the one who is
ALWAYS the doubter or the one fretting!
As I sat playing bunco with the girls last night....
I began thinking about our "list" and the
"GOOD" side got another item added.When I was
working, my RA had gotten so bad that all I COULD or
WANTED to do was come home and crawl in the bed as
soon as I entered the door after school. TODAY I had
two things on my calendar.... a senior brunch for
a sweet friend of the family and bunco. I know that my
body can not do both.....so speak with my daughter
and decide to take her friend out next week.....
I went and rolled the dice for 3 hours. I enjoyed every
laugh, conversation, every smile on each face.....
I soaked them up! After being in solitary confinement
for 3 months (had to stay home due
to white blood count being 2.5...or wear a mask
if I left home...NOT REALLY IN PRISON..
.but home bound) I spend more time making sure
to recognize and savor the things around me that
God has blessed us with, things like being able to
watch my friends just being silly~ these things I will
now etch in my memory .....and count it all a blessing!!
I was taking all of the "little" things God has blessed us
with.....SO MANY ...and just taking them..... for granted!
I am thankful for each and every moment that He sends
a blessing through the chirp of a bird, the soft touch of
my kittens tail on my skin, the "name that tune" games
I play with my husband, the texts from my children....
I could go and on.....even thanking Him for sending me
home at this time..... because the list of "GOOD"
reasons from this long-term disability retirement
is outweighing the "BAD".....HE IS MIGHTY INDEED!!
"The Lord will fight for you, you need only to be still."
Exodus 14:14
"The LORD your God is with you, e is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing."
Zephaniah 3:17
Exodus 14:14
"The LORD your God is with you, e is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing."
Zephaniah 3:17
Friday, May 18, 2012
Look at my baby's smile......Frappe!
Tuesday, May 15, 2012
On a rollercoaster ride.....steroids....oyyyy
Monday, May 14, 2012
This week's agenda.....
Friday, May 11, 2012
totally standing on the promises of God.....
Psalm 31:24
Be strong and take heart,
all you who hope in the LORD.
Today my hands are so swollen and I can't lift
my arms due to the tendon that has been
eaten away by the Rheumatoid Arthritis.
There is now a tear in my tendons on both
shoulders that causes the flare up to
worsen, which means the tendon now
becomes inflamed (not just the synovial fluid)
now that the RA has eaten at it....our
next step will be shoulder surgery. I am
firmly believing that my Father is in the
miracle working business and am praying
for remission. Please join with me in this
prayer and also in the prayer to develop
a cure for this chronic crippling disease that
so MANY know so LITTLE about.
Wednesday, May 9, 2012
The Spoon Theory.... daily choices .....
I got up this morning and thought about
MY SPOONS…. It has been raining here
and very gloomy. My hips and feet
haven’t cooperated well…..so I’ve been
doing some crafting in my room. I got
on facebook to check on my new friends
on the RA pages I follow. A sweet new
friend, with two small children, is going
MY SPOONS…. It has been raining here
and very gloomy. My hips and feet
haven’t cooperated well…..so I’ve been
doing some crafting in my room. I got
on facebook to check on my new friends
on the RA pages I follow. A sweet new
friend, with two small children, is going
through the SAME confusion I remember
walking in when I was diagnosed with RA
after the birth of my first child 21 years ago.
HOW AM I GOING TO GO AND DO
walking in when I was diagnosed with RA
after the birth of my first child 21 years ago.
HOW AM I GOING TO GO AND DO
AND PLAY with my babies like I want to…
WHEN MOVING ISN’T AN OPTION SOME
DAYS. First I want to thank RAGuy (www.rheumatoidarthritisguy.com)
WHEN MOVING ISN’T AN OPTION SOME
DAYS. First I want to thank RAGuy (www.rheumatoidarthritisguy.com)
for sharing this. Due to my RA becoming
so aggressive this year, I was again
walking in that same confusion and fear
after I had to retire early when I began
so aggressive this year, I was again
walking in that same confusion and fear
after I had to retire early when I began
following a few RA pages on facebook.
It was
so neat to be with people who UNDERSTAND
this disease and it’s limitation. When he
posted the “Spoon Theory” link, I read it
and sent it to my best friend and my
so neat to be with people who UNDERSTAND
this disease and it’s limitation. When he
posted the “Spoon Theory” link, I read it
and sent it to my best friend and my
husband because it
explained my daily
struggle so very well. It really helped them
understand the daily internal battle I
have over decisions that others don’t even
struggle so very well. It really helped them
understand the daily internal battle I
have over decisions that others don’t even
think
about. He has also published a book
of RA hands and stories….very inspiring website.
of RA hands and stories….very inspiring website.
by-christine/the-spoon-theory-written-by-christine-miserandino/
The Spoon Theory is about difference in
the daily options that "healthy" people have
from the moment they wake up compared
to those of us with a chronic auto-immune
disease. Each “move or choice” we make,
we must consider the “energy” or “spoons”
used to make that “move or choice”. We also
have to keep the side effects from the
chemo infusion treatments and other meds,
which can hit whenever they decide to
in mind. The hardest thing is wanting to
go and do all of the things you
The Spoon Theory is about difference in
the daily options that "healthy" people have
from the moment they wake up compared
to those of us with a chronic auto-immune
disease. Each “move or choice” we make,
we must consider the “energy” or “spoons”
used to make that “move or choice”. We also
have to keep the side effects from the
chemo infusion treatments and other meds,
which can hit whenever they decide to
in mind. The hardest thing is wanting to
go and do all of the things you
WANT to do….but NOT being able to do
them because it will put you in bed for
two or three days AFTER you PUSH yourself
to do it. The let down on your family
them because it will put you in bed for
two or three days AFTER you PUSH yourself
to do it. The let down on your family
and friends’
faces because they think you
are just being lazy or are not very consistent.
In order for others NOT to feel this way about
me…. I pushed for YEARS and am now on
disability retirement at age 43. I wish I’d
read this SPOON THEORY years
are just being lazy or are not very consistent.
In order for others NOT to feel this way about
me…. I pushed for YEARS and am now on
disability retirement at age 43. I wish I’d
read this SPOON THEORY years
ago….it would have helped me explain to
my close friends and family the struggle I
have when trying to meet everyone’s
needs (including my own) in a better way.
I would not have struggled so hard
my close friends and family the struggle I
have when trying to meet everyone’s
needs (including my own) in a better way.
I would not have struggled so hard
to PUSH myself beyond the SPOONS I had
available for the day. I hope this helps others
who are walking in these very SAME shoes.
Let your friends and family read it so
that they too can understand that
available for the day. I hope this helps others
who are walking in these very SAME shoes.
Let your friends and family read it so
that they too can understand that
a “little
decision” for them is
not so LITTLE for you.
not so LITTLE for you.
Tuesday, May 8, 2012
Sunshine inside ....
Monday, May 7, 2012
It is raining outside....but.....
Wednesday, May 2, 2012
Haven't posted in a few days... we've had a sick kitten.
Thursday, April 26, 2012
Woke up with "Faith Book" on my mind..anyone want to join?
Don't miss out on a blessing because it isn't packaged the way that you expect.
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