Tuesday, May 22, 2012
New York ....here we come.....
Monday, May 21, 2012
Today has been a rough one......
Sunday, May 20, 2012
The List......................
Each new day is bringing with it another reason to
enjoy this season in my life. My hubby and I
always make "the good/the bad" lists when facing
hard decisions or things in our lives that can't be
changed. He knows how very literal and visual I am...
and this is a way that I can see on black and white
the GOOD, the BAD, and the UGLY all at the
same time. Each time we go through trials or changes
or have to make a big life-changing decision, he
always says..."It's going to be alright baby! God's
got this too....He has NEVER let us down." I have
such a strong faith, yet I am the one who is
ALWAYS the doubter or the one fretting!
As I sat playing bunco with the girls last night....
I began thinking about our "list" and the
"GOOD" side got another item added.When I was
working, my RA had gotten so bad that all I COULD or
WANTED to do was come home and crawl in the bed as
soon as I entered the door after school. TODAY I had
two things on my calendar.... a senior brunch for
a sweet friend of the family and bunco. I know that my
body can not do both.....so speak with my daughter
and decide to take her friend out next week.....
I went and rolled the dice for 3 hours. I enjoyed every
laugh, conversation, every smile on each face.....
I soaked them up! After being in solitary confinement
for 3 months (had to stay home due
to white blood count being 2.5...or wear a mask
if I left home...NOT REALLY IN PRISON..
.but home bound) I spend more time making sure
to recognize and savor the things around me that
God has blessed us with, things like being able to
watch my friends just being silly~ these things I will
now etch in my memory .....and count it all a blessing!!
I was taking all of the "little" things God has blessed us
with.....SO MANY ...and just taking them..... for granted!
I am thankful for each and every moment that He sends
a blessing through the chirp of a bird, the soft touch of
my kittens tail on my skin, the "name that tune" games
I play with my husband, the texts from my children....
I could go and on.....even thanking Him for sending me
home at this time..... because the list of "GOOD"
reasons from this long-term disability retirement
is outweighing the "BAD".....HE IS MIGHTY INDEED!!
"The Lord will fight for you, you need only to be still."
Exodus 14:14
"The LORD your God is with you, e is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing."
Zephaniah 3:17
Exodus 14:14
"The LORD your God is with you, e is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing."
Zephaniah 3:17
Friday, May 18, 2012
Look at my baby's smile......Frappe!
Tuesday, May 15, 2012
On a rollercoaster ride.....steroids....oyyyy
Monday, May 14, 2012
This week's agenda.....
Friday, May 11, 2012
totally standing on the promises of God.....
Psalm 31:24
Be strong and take heart,
all you who hope in the LORD.
Today my hands are so swollen and I can't lift
my arms due to the tendon that has been
eaten away by the Rheumatoid Arthritis.
There is now a tear in my tendons on both
shoulders that causes the flare up to
worsen, which means the tendon now
becomes inflamed (not just the synovial fluid)
now that the RA has eaten at it....our
next step will be shoulder surgery. I am
firmly believing that my Father is in the
miracle working business and am praying
for remission. Please join with me in this
prayer and also in the prayer to develop
a cure for this chronic crippling disease that
so MANY know so LITTLE about.
Wednesday, May 9, 2012
The Spoon Theory.... daily choices .....
I got up this morning and thought about
MY SPOONS…. It has been raining here
and very gloomy. My hips and feet
haven’t cooperated well…..so I’ve been
doing some crafting in my room. I got
on facebook to check on my new friends
on the RA pages I follow. A sweet new
friend, with two small children, is going
MY SPOONS…. It has been raining here
and very gloomy. My hips and feet
haven’t cooperated well…..so I’ve been
doing some crafting in my room. I got
on facebook to check on my new friends
on the RA pages I follow. A sweet new
friend, with two small children, is going
through the SAME confusion I remember
walking in when I was diagnosed with RA
after the birth of my first child 21 years ago.
HOW AM I GOING TO GO AND DO
walking in when I was diagnosed with RA
after the birth of my first child 21 years ago.
HOW AM I GOING TO GO AND DO
AND PLAY with my babies like I want to…
WHEN MOVING ISN’T AN OPTION SOME
DAYS. First I want to thank RAGuy (www.rheumatoidarthritisguy.com)
WHEN MOVING ISN’T AN OPTION SOME
DAYS. First I want to thank RAGuy (www.rheumatoidarthritisguy.com)
for sharing this. Due to my RA becoming
so aggressive this year, I was again
walking in that same confusion and fear
after I had to retire early when I began
so aggressive this year, I was again
walking in that same confusion and fear
after I had to retire early when I began
following a few RA pages on facebook.
It was
so neat to be with people who UNDERSTAND
this disease and it’s limitation. When he
posted the “Spoon Theory” link, I read it
and sent it to my best friend and my
so neat to be with people who UNDERSTAND
this disease and it’s limitation. When he
posted the “Spoon Theory” link, I read it
and sent it to my best friend and my
husband because it
explained my daily
struggle so very well. It really helped them
understand the daily internal battle I
have over decisions that others don’t even
struggle so very well. It really helped them
understand the daily internal battle I
have over decisions that others don’t even
think
about. He has also published a book
of RA hands and stories….very inspiring website.
of RA hands and stories….very inspiring website.
by-christine/the-spoon-theory-written-by-christine-miserandino/
The Spoon Theory is about difference in
the daily options that "healthy" people have
from the moment they wake up compared
to those of us with a chronic auto-immune
disease. Each “move or choice” we make,
we must consider the “energy” or “spoons”
used to make that “move or choice”. We also
have to keep the side effects from the
chemo infusion treatments and other meds,
which can hit whenever they decide to
in mind. The hardest thing is wanting to
go and do all of the things you
The Spoon Theory is about difference in
the daily options that "healthy" people have
from the moment they wake up compared
to those of us with a chronic auto-immune
disease. Each “move or choice” we make,
we must consider the “energy” or “spoons”
used to make that “move or choice”. We also
have to keep the side effects from the
chemo infusion treatments and other meds,
which can hit whenever they decide to
in mind. The hardest thing is wanting to
go and do all of the things you
WANT to do….but NOT being able to do
them because it will put you in bed for
two or three days AFTER you PUSH yourself
to do it. The let down on your family
them because it will put you in bed for
two or three days AFTER you PUSH yourself
to do it. The let down on your family
and friends’
faces because they think you
are just being lazy or are not very consistent.
In order for others NOT to feel this way about
me…. I pushed for YEARS and am now on
disability retirement at age 43. I wish I’d
read this SPOON THEORY years
are just being lazy or are not very consistent.
In order for others NOT to feel this way about
me…. I pushed for YEARS and am now on
disability retirement at age 43. I wish I’d
read this SPOON THEORY years
ago….it would have helped me explain to
my close friends and family the struggle I
have when trying to meet everyone’s
needs (including my own) in a better way.
I would not have struggled so hard
my close friends and family the struggle I
have when trying to meet everyone’s
needs (including my own) in a better way.
I would not have struggled so hard
to PUSH myself beyond the SPOONS I had
available for the day. I hope this helps others
who are walking in these very SAME shoes.
Let your friends and family read it so
that they too can understand that
available for the day. I hope this helps others
who are walking in these very SAME shoes.
Let your friends and family read it so
that they too can understand that
a “little
decision” for them is
not so LITTLE for you.
not so LITTLE for you.
Tuesday, May 8, 2012
Sunshine inside ....
Monday, May 7, 2012
It is raining outside....but.....
Wednesday, May 2, 2012
Haven't posted in a few days... we've had a sick kitten.
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